Meet Our Md. Champion, Zannah

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Meet Our Md. Champion, Zannah

Published on July 8, 2016

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Zannah’s parents were alarmed when she fell limp in her father’s arms at 2 weeks old. With a prenatal heart defect and a hypoplastic right heart, they knew the odds of good health were against her. She was taken to the hospital in cardiac arrest and diagnosed with a rare bacterial infection. Zannah was placed on a life-support machine that took over the function of her lungs and heart. She was given 24 to 48 hours to live.

Miraculously, Zannah survived, and that hospital visit marked the first of several, including two open-heart surgeries to repair her heart defects. Caretakers recommended Zannah’s parents be tested to ensure that heart conditions weren’t a family matter. As a result of the screenings, Zannah’s mother discovered she had hypoplastic left heart syndrome.

Zannah is now a healthy little girl who loves to sing and dance, as well as laugh with her jokester father.

How donations helped Zannah at Johns Hopkins Children’s Center:  

When Zannah went into cardiac arrest following the diagnosis of several heart conditions and the contraction of a rare bacterial infection, she was placed on a special machine that ultimately saved her life. Donations help fund this type of life-saving equipment at Zannah’s member CMN Hospital.

Stories that Inspire

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Adam Devine Joins Children’s Miracle Network as Chief FUN-Raiser to Help Raise $1 Billion for Kids’ Health 

Actor and Comedian Devine, Former Patient and Longtime Supporter of Organization, Joins To Bring Attention to Critical Funding Needs for Local Children’s Hospitals.

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Meet Ark. 2016-17 Champion, JaKiah

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Meet Ark. 2016-17 Champion, JaKiah

Published on July 7, 2016

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Starting preschool can be overwhelming for some 4-year-olds. For JaKiah, the hardest part was saying goodbye to her classmates when she was diagnosed with kidney cancer a month and a half into the school year.

During a routine checkup, JaKiah’s primary care physician noticed swelling in her abdomen. They initially believed it was a minor infection, but soon discovered it was an advanced stage of Wilms’ tumor. While her school friends learned the alphabet, JaKiah underwent months of chemotherapy, radiation therapy and surgery.

Today, JaKiah is in remission. She is a vibrant and happy child who will continue enduring numerous ultrasounds, CT scans, X-rays, blood work and check-ups until 2023 to ensure she’s cancer free. JaKiah doesn’t mind; she’s happy to be back in school with her friends.

Children's Miracle Network Champions, photographed by Justin Hackworth Children’s Miracle Network Champions, photographed by Justin Hackworth

How donations helped JaKiah at Arkansas Children’s Hospital:   

CMN Hospitals funds helped pay for the new 258,000-square-foot wing that houses the hematology/oncology clinic where JaKiah was treated and the healing garden where she spent days recovering.

Stories that Inspire

Stories of Impact

Adam Devine Joins Children’s Miracle Network as Chief FUN-Raiser to Help Raise $1 Billion for Kids’ Health 

Actor and Comedian Devine, Former Patient and Longtime Supporter of Organization, Joins To Bring Attention to Critical Funding Needs for Local Children’s Hospitals.

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Meet Corbin, Our 2016-17 La. Champion

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Meet Corbin, Our 2016-17 La. Champion

Published on July 5, 2016

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Corbin doesn’t let his cerebral palsy hold him back. Born prematurely, he first visited his children’s hospital for a physical therapy evaluation at 13 months old. A child this age would typically be sitting, crawling or possibly walking, but Corbin could barely roll.

In therapy almost five days a week since his initial diagnosis, Corbin has shown amazing perseverance through his illness. In just two months of therapy, he went from walking 150 feet in 30 minutes to doing so in 10 minutes, in only two months.

Corbin is a bundle of energy and enjoys T-ball, riding horses and playing video and board games. He loves spending time on the farm, like his dad, and even participates in mutton busting — similar to bull riding at rodeos, where children ride or race sheep. Not even a rough-and-tumble sheep can stop this rambunctious kid.

How donations helped Corbin at CHRISTUS Health Shreveport-Bossier:  

CMN Hospitals donations have helped Corbin since birth. He was transported to intensive care by a team supported by CMN Hospitals funds. Since then he has visited the Kid’s Clinic, where equipment purchased by donations has allowed Corbin to move from his walker to tripod canes.

Stories that Inspire

Stories of Impact

Adam Devine Joins Children’s Miracle Network as Chief FUN-Raiser to Help Raise $1 Billion for Kids’ Health 

Actor and Comedian Devine, Former Patient and Longtime Supporter of Organization, Joins To Bring Attention to Critical Funding Needs for Local Children’s Hospitals.

Read the Full Story

Meet Nate, our 2016-17 Kan. Champion

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Meet Nate, our 2016-17 Kan. Champion

Published on June 30, 2016

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Now over 6 feet tall, Nate has a unique view of the world — both from a physical perspective and an intellectual one. His childlike innocence allows him to see the good in everyone and everything around him.

Nate was born with a complex and uncommon set of heart defects, and a 30 percent chance of survival. His heart pumps backward; his blood is only oxygenated once; and he has loud murmurs and multiple holes in his heart chambers. Nate also suffers from a minor seizure disorder.

Though aware of his conditions, Nate seems oblivious to their constraints. He tires easily because he runs on less oxygen than everyone else, but has a fighting spirit that keeps him from giving up. Nate is happiest outdoors, listening to bird songs and trying to identify the species, playing in the sandbox and making up stories. He also has a passion for trains.

His mom shared a lesson we can all learn from: “Nate conquers his disability by being joyful.”

How donations helped Nate at St. Francis Foundation:  

CMN Hospitals donations help cover Nate’s prescription costs and travel expenses for out-of-town doctor visits and surgical procedures. They also purchased a stationary bike seven years ago and recently, a tandem bike called “big blue.” Each has greatly improved Nate’s quality of life by helping him stay active.

Stories that Inspire

Stories of Impact

Adam Devine Joins Children’s Miracle Network as Chief FUN-Raiser to Help Raise $1 Billion for Kids’ Health 

Actor and Comedian Devine, Former Patient and Longtime Supporter of Organization, Joins To Bring Attention to Critical Funding Needs for Local Children’s Hospitals.

Read the Full Story

Meet 2016-17 Ala. Champion, Delaney

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Meet 2016-17 Ala. Champion, Delaney

Published on June 6, 2016

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“Have courage and be kind.” These words, bestowed upon Cinderella by her mother, inspire Delaney to fight her battle with spina bifida. That fight began at birth when she was surprisingly diagnosed with a severe form of spina bifida. Delaney’s vertebrae didn’t develop properly around her spinal cord, causing complications that required surgery on the second day of her life. Five major surgeries followed, including having a shunt placement in her brain.

Delaney’s positive outlook and social calendar overshadow her daily struggles; there’s waterskiing, shrimping, Girl Scouts, piano lessons and volunteering with her dad, a veterinarian whose career she aspires to have.

In 2014, Delaney and her family once again turned to Cinderella’s mother’s words after losing their home during a terrible flood. Family and friends dug them out of the mud and they are planning to rebuild a home that is more accessible for Delaney.

Delaney’s latest goal is wheelchair racing. She’s raising money for a chair with her cupcake and lemonade stand.

How donations helped Delaney at the University of South Alabama Children’s & Women’s Hospital: 

Delaney receives treatments and consultations with specialists in neurosurgery, orthopedics, urology and more. All of these areas are supported by CMN Hospitals donations.

Stories that Inspire

Stories of Impact

Adam Devine Joins Children’s Miracle Network as Chief FUN-Raiser to Help Raise $1 Billion for Kids’ Health 

Actor and Comedian Devine, Former Patient and Longtime Supporter of Organization, Joins To Bring Attention to Critical Funding Needs for Local Children’s Hospitals.

Read the Full Story

Our 2016-17 Ky. Champion Has Raised more than $100K for His Children’s Hospital

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Our 2016-17 Ky. Champion Has Raised more than $100K for His Children’s Hospital

Published on May 11, 2016

ky-aiden-johnsonDiagnosed with cancer of the blood and bone marrow when he was 2 years old, Aiden has been through a lot. He underwent three long years of treatment, having his last chemotherapy treatment on his sixth birthday. After being off treatment for two years, the unthinkable happened when Aiden and his family learned that his cancer had returned.

“Fighting cancer stinks. Fighting cancer twice stinks even more! I was very scared but never wanted to give up the fight,” said Aiden. He has undergone multiple procedures and treatments including central line placements, chemotherapy, lumbar punctures and countless blood and platelet transfusions.

Aiden is now in remission. During his hospital stays, Aiden used Legos as a distraction from treatment. Since it helped comfort him, he and his family have made it their mission to provide Legos to other kids in the hospital and have collected thousands, while also raising more than $100,000 for their hospital.

How donations helped Aiden at Kosair Children’s Hospital:  

The child life program, funded by CMN Hospitals donations, provides patients like Aiden with Beads of Courage, a visual journal of the treatments they’ve endured. Currently, Aiden’s beads measure over 90 feet long.

Stories that Inspire

Stories of Impact

Adam Devine Joins Children’s Miracle Network as Chief FUN-Raiser to Help Raise $1 Billion for Kids’ Health 

Actor and Comedian Devine, Former Patient and Longtime Supporter of Organization, Joins To Bring Attention to Critical Funding Needs for Local Children’s Hospitals.

Read the Full Story

Guest Post: A #MiracleMom’s Story

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Guest Post: A #MiracleMom’s Story

Published on May 5, 2016

 

In honor of Mother’s Day, one “Miracle Mom” shares her experience with Children’s Miracle Network Hospitals via Remax.

It was June 23, 2013. After years of infertility, my husband and I were welcoming our triplets into this world. What should have been the most beautiful day of my life turned into a chaotic and bittersweet day as I delivered my babies more than 17 weeks premature. As I look back at this day, which is forever etched into my heart and memory, I can’t help but smile. My children wouldn’t have been given a chance at life if we weren’t at St. John’s Children’s Hospital in Springfield, Illinois, a Children’s Miracle Network Hospital.

At this hospital, I celebrated the happiest day of my life, along with the two darkest days I’ve ever experienced. My children were born at 22 weeks 6 days, not even considered viable by most hospitals in our country. Yet the neonatologists were ready, in case my children showed signs of life. My daughter, Abigail, died a few hours after birth. Her brother, Parker, lived his entire 55 days in the neonatal intensive care unit (NICU). Our lone survivor, Peyton, is the definition of a Miracle Child. After spending nearly four months in the NICU, she’s alive and thriving at close to 3 years old.

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The NICU can be a scary place. For some babies, it’s a brief stop on their way home. For others, like Peyton and Parker, it becomes their home. My husband and I spent every waking hour at St. John’s Children’s Hospital, oftentimes sitting bedside at our children’s isolettes, not able to even touch our babies because they were too weak. At just over a pound each, we never expected our babies to survive. But the doctors and nurses gave us hope every single day. And even as Parker died in our arms at nearly 2 months old, the staff provided us comfort. People often ask me how I return to a hospital where two of my children died. It’s easy — the hospital staff became family. Because of top-notch medical care, each of our triplets were born alive. And even though two of our babies lived just a short life, those few memories at the hospital will last us a lifetime.

As a television news anchor, I’ve spent years volunteering for children’s organizations and interviewing families with unique stories. Never in a million years did I expect to someday become one of those families. But I feel so blessed to be part of the Children’s Miracle Network Hospitals family. You never understand the benefit of a CMN Hospital until you find yourself in need of one. For my family, we saw firsthand how donations to CMN Hospitals are being used. What may seem like a simple reclining chair is so much more to a NICU family. For us, that’s where we first held our 1-pound babies, giving us that moment where we finally felt like a family. After the NICU journey, our surviving triplet visited the follow-up clinic, where doctors checked her development. Those rooms funded by CMN Hospitals may look like a typical exam room, but for us it’s so much more. It’s symbolic of how far our Miracle Child has come.

Today, our daughter Peyton is not only a survivor, she’s a walking miracle. As a “22-weeker,” she’s the youngest baby to survive at our hospital. As I watched Peyton recently dance at a CMN Hospitals event, I couldn’t help but tear up. She has defied the odds, conquering every uphill battle that has come her way. She’s not only beautiful and full of energy, she’s healthy. And it’s all because of St. John’s Children’s Hospital. 

Since partnering with Children’s Miracle Network Hospitals in 1992, REMAX agents have raised more than $147 million for the charity’s 170 member hospitals in the U.S. and Canada. Donations help fund pediatric medical equipment and treatments, healthcare services and charitable care. Learn more by visiting www.cmnhospitals.org/. You can follow Stacey’s journey as a Miracle Mom on her blog, “Perfectly Peyton.”

Stories that Inspire

Stories of Impact

Adam Devine Joins Children’s Miracle Network as Chief FUN-Raiser to Help Raise $1 Billion for Kids’ Health 

Actor and Comedian Devine, Former Patient and Longtime Supporter of Organization, Joins To Bring Attention to Critical Funding Needs for Local Children’s Hospitals.

Read the Full Story

REMAX Miracle Agents: Robert Struck encourages others with son’s story

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Published on August 26, 2014

It’s the Month of Miracles! REMAX agents are working hard all year to sell Miracle Homes, making a donation to kids in need at Children’s Miracle Network Hospitals with every closed transaction. But what are these agent’s stories? Stay tuned for our Month of Miracles Miniseries of inspiring REMAX agents.

Robert Struck is raising funds for Hurley Children’s Hospital in honor of his son Isaiah.

Miracle Agent Robert Struck from REMAX of Michigan has been committed to raising funds and awareness for Children’s Miracle Network Hospitals since his son Isaiah suffered severe second and third degree burns on much of his body following a bonfire accident.

Isaiah was rushed to Hurley Children’s Hospital, the closest Children’s Miracle Network Hospital with Level 1 Trauma Burn unit, where he stayed for two weeks. Isaiah recently won the Battle of the Brave national contest put on by Speedway, earning $20,000 for Hurley.

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Robert with son Isaiah

Although dad Robert never expected to be “one of those unfortunate families,” he has used this experience to encourage other families and supporting his local CMN Hospital more than ever in gratitude for the medical care, expertise and hope that was given to Isaiah and his family.

The funds that REMAX agents like Robert raise each year through the Miracle Homes program is critical to provide needed pediatric care for sick and injured kids in your community, neighborhood and even family. Thank you to Robert and our friends at REMAX for your dedicated support!

Stories that Inspire

Stories of Impact

Adam Devine Joins Children’s Miracle Network as Chief FUN-Raiser to Help Raise $1 Billion for Kids’ Health 

Actor and Comedian Devine, Former Patient and Longtime Supporter of Organization, Joins To Bring Attention to Critical Funding Needs for Local Children’s Hospitals.

Read the Full Story

REMAX Miracle Agents: Cliff King motivated by daughter’s legacy

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Published on August 1, 2014

It’s the Month of Miracles! REMAX agents are working hard all year to sell Miracle Homes, making a donation to kids in need at Children’s Miracle Network Hospitals with every closed transaction. But what are these agent’s stories? Stay tuned for our Month of Miracles Miniseries of inspiring REMAX agents.

Cliff King is raising funds for Children’s Hospital Foundation of Manitoba in Winnipeg, British Columbia, in honor of his daughter’s legacy.

When Winnipeg agent Cliff King joined REMAX, he immediately jumped aboard the company’s involvement with Children’s Miracle Network in Canada. Little did Cliff know that just months later those Miracle Homes he was selling would be helping to support the medical needs of his own daughter.

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Kelsey, left, made fantastic relationships with caregivers at Children’s Miracle Network hospitals.

At age 16, Cliff’s daughter Kelsey was diagnosed with osteogenic sarcoma and spent many weeks at her local Children’s Miracle Network hospitals, Children’s Hospital Foundation of Manitoba in Winnipeg, British Columbia and the B.C. Children’s Hospital Foundation. The caregivers in the Winnipeg CK5 ward soon became like a second family to the Kings. For the next 2.5 years, Kelsey underwent chemotherapy, radiation, blood transfusions and surgeries to try and defeat the cancer and prolong her life until she succumbed to the disease at home just one day prior to her 19th birthday.

Since his daughter passed away, Cliff has dedicated his free time to volunteering at the Children’s Miracle Network Radiothon every year and raising funds for Children’s Hospital Foundation of Manitoba in honor of Kelsey. Even his son Scott, also now a REMAX realtor, has joined his dad in manning the phones.

The funds that REMAX agents like Cliff raise each year through the Miracle Homes program is critical to provide needed pediatric care for sick and injured kids in your community, neighborhood and even family. Thank you to Cliff and our friends at REMAX for your dedicated support!

Stories that Inspire

Stories of Impact

Adam Devine Joins Children’s Miracle Network as Chief FUN-Raiser to Help Raise $1 Billion for Kids’ Health 

Actor and Comedian Devine, Former Patient and Longtime Supporter of Organization, Joins To Bring Attention to Critical Funding Needs for Local Children’s Hospitals.

Read the Full Story

A Story with Heart and Love’s

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Published on September 7, 2012

Love’s Travel Stops’ annual paper heart campaign runs all this month. The dollars customers donate to their local hospitals have very real effects. Here, a Love’s employee shares how funds hit home with the delivery of his newborn daughter.

Kirk Johnson is no stranger to Love’s Travel Stops annual Children’s Miracle Network Hospitals fundraising campaign. Kirk has worked for Love’s since 2001 and in, that time, he has seen his fair share of dollars raised for CMN Hospitals at Love’s locations nationwide. Kirk began his career at Love’s as an assistant manager, and today he is a district manager overseeing seven stores in the San Antonio, Texas, area.

Kirk knows what CMN Hospitals are all about from his experience with Love’s, but he had no idea that one day that funds raised during the campaign would directly benefit him and his loved ones someday.

Kirk and his wife, Nikki, were elated when they found out they would be having a baby girl, due in spring 2012. Excitement turned to fear when at just 23 weeks pregnant, Nikki was told that their baby had Turner syndrome and was given a three percent chance of surviving. At around 30 weeks the doctor saw that the ventricles in her brain were enlarged and ordered a fetal MRI to determine the cause. The MRI showed Agenesis of the Corpus Callosum (ACC), which is a fancy term to say she is missing the middle part of her brain that allows the two hemispheres to “talk” to each other.

“Although we knew we would love our little girl no matter what, we were scared of the unknown. What would her future hold? Would she ever be able to walk? Or talk? The waiting was the hardest part,” Nikki said.

Madeline Grace was born on March 7, 2012, at a children’s hospital in San Antonio and Nikki was only able to hold her princess for a few seconds before she was whisked away to the NICU. Turner syndrome carries a high risk of multiple medical conditions involving the heart and kidneys. As soon as she arrived to the NICU they ordered several tests of her heart, abdomen and head.

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The next day after all the test results came back; the doctors said that she would need heart surgery because her aortic arch was too narrow. Madeline’s heart surgery was scheduled for the next week and she would have to remain in the NICU until then to receive a drug to keep her blood flowing easily until she could receive the surgery.

“The doctors were very good at explaining the process and what to expect. We kept our hopes up and tried only to focus on the positives. Even though we had a week to prepare, it is still terrifying to know your little girl was going to have surgery on her heart! The surgery team was very understanding and took the time to talk us through every step and called us from the operating room every hour to give us updates,” said Kirk.

Madeline came through the surgery like a champ and the next three weeks were spent recovering and getting her to eat. After much improvement, Madeline was finally able to come home and start growing like a weed!

“Madeline is a very happy curious little girl that we fall in love with more every day. Although we don’t know exactly what the future holds, we are excited to see all that Madeline will accomplish and so thankful that God chose us to be the parents of this amazing little fighter,” Nikki said.

“The doctors at the children’s hospital were not intimidated by our child’s three percent odds.  I think that as they get better technology the odds are going up for other children like ours.  If it were not for programs like CMN Hospitals providing new technology and skilled doctors, my daughter probably would not have made it.  Words can’t say how thankful we are for the help we received,” said Kirk.

Kirk said his experience has changed the way he looks at Love’s CMN Hospitals fundraising campaign. “I always knew it was a great cause, now I am emotionally tied to it for life. I hope I can share my story with the rest of the team this year and motivate them to raise even more donations for CMN hospitals. You never know when you might be the one who needs their help.”

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Madie

 

Stories that Inspire

Stories of Impact

Adam Devine Joins Children’s Miracle Network as Chief FUN-Raiser to Help Raise $1 Billion for Kids’ Health 

Actor and Comedian Devine, Former Patient and Longtime Supporter of Organization, Joins To Bring Attention to Critical Funding Needs for Local Children’s Hospitals.

Read the Full Story
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