During the last month of pregnancy, Lanna’s parents were told that, according to scans, their baby wasn’t growing as expected. The family was referred to Arkansas Children’s Hospital, a Children’s Miracle Network hospital, when Lanna was one month old. There, genetic testing revealed achondroplasia, the most common form of short-limbed dwarfism. The news brought uncertainty and fear, but it also brought connection, expertise, and hope. Lanna’s family was immediately surrounded by specialists who explained every test, answered every question, and ensured they never felt alone. Her care has included orthopedic evaluations, regular growth monitoring, and ongoing genetic consultations, all centered on helping her live the healthiest, happiest life possible. Today, twelve-year-old Lanna participates in a groundbreaking clinical trial designed to stimulate bone growth for children with achondroplasia. Her weekly injections at home are paired with follow-up visits where her care team celebrates each small victory, like growing two centimeters, with cheers and high-fives. They remember her favorite things and make sure she always ends each visit with a prize from the treasure bucket. Lanna’s story is one of strength, compassion, and progress: proof that expert care and groundbreaking research can open doors to bright futures.
Every Children’s Miracle Network® hospital has a local Champion with an incredible healthcare story. Read more about their journeys, the specialized care they received and the difference it’s made in their lives.
Every donation helps kids like our Champions get the care they need at their local children’s hospital. From funding specialized equipment to advanced research and child life programs, your support helps these hospitals deliver the best possible care for all kids and families in their communities.
